Catherine Luis, NJ
The highlight of WAGR Weekend for me each year is seeing our children together. There is this incredible chemistry when the children meet each other as well as the siblings. It is a silent understanding
they all share, just as we do. Meeting new families & catching up with old friends is a big thrill to say the least. I learn so much from each family and their personal experiences. Talking over the internet does not compare to spending time together.
On the plane ride home I began counting how many children I have met with WAGR syndrome. I have had the pleasure of meeting 34 children. I can remember being told that I would never meet another child like Irm. Who knew?