If you are a parent whose child has recently been diagnosed with this disorder, we encourage you to read the following articles first:
In Time and With Love is a brief introduction to WAGR syndrome and the International WAGR Syndrome Association.
Coping With the Diagnosis discusses the emotions many parents experience, and includes suggestions for dealing with the impact of the diagnosis on your marriage, your other children, and on your family and friends.
What Is WAGR Syndrome? is an overview of this disorder. Keep in mind that people with WAGR syndrome are individuals. No one with WAGR syndrome has ALL of the conditions listed, and if a condition is present, it is often possible to be only mildly or moderately affected by it.
Successful Parent – Physician Partnerships WAGR syndrome is a very rare disorder, so it is unlikely that the doctors you encounter will be familiar with it. But most doctors are willing to learn, and will accept you as a partner in your child’s care. This article will show you how to develop a successful parent-physician partnership.
Family Stories includes photos and descriptions of people of all ages with WAGR syndrome. These stories will encourage and inspire you!