The mission of the International WAGR Syndrome Association is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives.”
The International WAGR Syndrome Association is a not-for-profit 501 (C)(3) charitable organization comprised of a network of families, health care professionals, educators, and others who care for individuals with WAGR syndrome. Our members are located all over the world. Membership is free. Funding for the organization comes from donations and grants, memorial donations, and fundraising activities led by member friends and families.