Developmental Delay and WAGR Syndrome
The “R” in WAGR stands for Range of developmental delays.
Developmental delay refers to the condition of a child being less developed mentally or physically than is typical for his/her age. Children with WAGR syndrome usually have some degree of developmental delay, with most falling in the mildly to moderately delayed range. A few people with WAGR syndrome have profound delay, and there are some who have no delays.
People with WAGR syndrome may have:
- Intellectual Disability
- Delays in Gross Motor development (sitting up, crawling, walking)
- Delays in Fine Motor development (holding a spoon, writing with a pen or pencil, keyboarding)
- Delays in the development of speech/language
Once called “mental retardation,” intellectual disability is characterized by below-average intelligence or mental ability and a lack of skills necessary for day-to-day living. Assigning a “mental age” to an older child or adult with an intellectual disability is inappropriate. Like people with typical intelligence, people with intellectual disabilities can and do learn new skills throughout their lives, but they learn them more slowly. With education and support, adults with intellectual disabilities can lead purposeful, fulfilling, surprisingly independent lives.
More information on Intellectual Disability can be found here: http://www.webmd.com/children/intellectual-disability-mental-retardation
Delays in Motor and/or Speech Development
Early Intervention (physical, occupational and speech therapy for babies and toddlers) and special education services can be very effective in helping children with WAGR syndrome to reach developmental milestones.
Last updated: May, 2015
Kelly Trout, BSN, RN
International WAGR Syndrome Association