Kelly Trout, BSN, RN is a co-founding member of the IWSA, former President, and currently Co-Chairperson. She is currently serving as Director, Research and Medical Advocacy. Kelly assists families and physicians with questions about diagnosis and treatment of WAGR syndrome and related disorders. She is also Program Manager for the IWSA Patient Registry. She has written numerous articles on WAGR syndrome for professional, lay, and web publications. Kelly lives with her family in San Antonio, Texas (USA). Her daughter Caroline has WAGR syndrome.