Susan Wilkinson lives in Derby, United Kingdom, with her husband Chris, and children Theo (11) and Tara (7) who has WAGR Syndrome. Susan graduated from the University of Heriot Watt in Edinburgh with a degree in Spanish and Russian and went onto to work in Public Relations and Communications, most recently for Toyota. She is now a stay-at-home-mum and does voluntary work in the special needs sector. Susan also enjoys vintage furniture restoration, reading and endures going to the gym! She has a particular interest in increasing UK sign-up of the CoRDs/IWSA Patient Registry.