"WAGR Awareness Day" is one day a year dedicated to increasing international understanding of:
What WAGR syndrome is
What it means to love someone with WAGR syndrome
How people with WAGR syndrome play a vital role in our lives, our schools, and in our communities
WAGR Awareness Day is also the IWSA's largest fundraiser of the year. This year, donations are even more crucial than ever before. With COVID-19 interfering with all of the IWSA's planned
fundraisers, WAGR Awareness Day is the opportunity for everyone to show their support and generosity.
The first WAGR Awareness Day was held on November 13, 2017. Since then, this annual event has continued to grow.
When is WAGR Awareness Day?
WAGR syndrome is caused by a genetic deletion that involves Chromosome 11p13 . All individuals with WAGR syndrome share a common segment of deleted genes that includes the WT1 (Wilms
tumor) gene, and the PAX6 (Aniridia) gene, as well as the genes that lie between these two.
In recognition of the location of this genetic deletion, WAGR Awareness Day is celebrated each year on November 13th.
How to Participate in WAGR Awareness Day
WAGR Awareness Day is a unique opportunity to share information about WAGR syndrome and how the IWSA supports individuals and families affected by the rare disorder. This is a great way to
show your support--encourage family members, friends, coworkers, and others in your community to donate to the IWSA.
Better medical care. Powerful research. Family support that makes a real and lasting difference in the lives of kids and adults with WAGR syndrome.
When you support the IWSA, you make ALL of these happen!
WAGR Awareness Day News
Each year, on November 13th, the IWSA celebrates WAGR Awareness Day. The first WAGR Awareness Day was held on November 13, 2017 and it has continued to grow. Check back for
the latest information and updates on this annual event.