Welcome to the International WAGR Syndrome Association. This site is dedicated to individuals and families with WAGR/11p deletion syndrome. It is our goal to serve as a source of hope, support and information so you don’t have to face this diagnosis on your own. More importantly it is our desire to celebrate the joy, love and courage our loved ones with WAGR/11p deletion give to us.
The Mission of the IWSA is to promote international knowledge and awareness of WAGR/11p Deletion syndrome and its complications and treatments, to stimulate research and to reach out those affected by WAGR syndrome in an effort to improve their lives.