“The mission of the IWSA is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives”
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IWSA Announces Name Modification--WAGR/11p Deletion Syndrome
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WAGR Syndrome is a very rare disorder.
There are less than a few hundred cases reported in the medical literature.
“WAGR” is an acronym for the most common features of this disorder.
Wilms' Tumor, Aniridia, Genito-Urinary Anomalies,
R- developmental delay/s
People with WAGR Syndrome have many things in common, but they are also individuals. It is important to remember that a given individual with WAGR syndrome may or may not have or develop all of the conditions listed.
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Nothing contained on this web site should be construed nor is intended to be used for medical diagnosis.
Consult a physician in the event of a medical problem.
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| ResearchMatch https://www.researchmatch.org |
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| Rare Disease Europe link |
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| Genetic Alliance link |
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| National Organization for Rare Disorders |
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Last updated 5/10/12
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