Corinne was born in October 2000 with Dandy-Walker Varient and WAGR. She is our oldest child and has 2 younger brothers, Colin and Cade. Corinne has taught our family so much about life and has helped me relax and enjoy the moments. On the WAGR spectrum, I would say she’s high functioning. She loves to ride her bike (2-wheels), listen to music, play school, ice skate, swim and bowl. One of the best things we did was get her involved with Special Olympics to be around peers and play sports and get exercise. Her current health conditions: glaucoma, cataracts, vertical nystagmus, aniridia, peter’s anomaly, Dandy-Walker Varient, FSGS (focal segmental glomeruloscerosis), asthma, sleep apnea, ear tubes. Corinne developed a nephrogenic rest at the age of 2 1/2 and had a partial nephrectomy. At 4 1/2 she developed Wilm’s Tumor on the same kidney and had a radical nephrectomy with 7 radiation treatments and 6 months of chemotherapy. I would just smile after a chemo treatment as Corinne would hop through the oncology waiting room towards the elevator. Her strength and innocence to her illness gave me so much courage. I call her “my angel” that has shown me there’s many things to enjoy in life. It’s unclear what the future holds and I’ve come to realize the best way to deal with this massive challenge is to just accept it and remember it’s out of my control. Over the past several years of meeting WAGR mom’s I’ve come to notice we are woman that like control and this child is our greatest gift to understanding someone else has control. Life is manageable not controllable, that’s what I’ve learned over the last 14 yrs.