Meg was my second child born nearly 23 years ago. She was 2 weeks early and born jaundiced, small and stiff as a board. I thought id break her when I was changing her. My midwife was Chinese and loved her little China baby.
Her eyes were jammed tight until about 6 weeks, when I took her to my GP and cried for an hour before spluttering out , ‘I know something’s wrong’.
Then the mind blowing round of hospital appointments started. She was admitted at 6 months old to guys hospital, London. Had 12 consultants round her bed and was diagnosed with aniridia and I was told about the connexion to wilms tumour. With rigorous OT/PT meetings we sorted out her stiffness and meg grew into a wonderful little girl. Always smiling and laughing. Always poorly with numerous ENT procedures but never let it get her down. Her positivity helped to lessen my concerns.
Then at 7 years of age, I stumbled across this WAGR site on the net. I’ve never been so enriched with advice and welcomed so openly and things began to look up. I took this to Megan’s consultants and was told, ‘oh yes we knew all along just thought you had enough to deal with …!’
Meg does have severe learning difficulties and she’s never going to live an independent life BUT she does have a happy fulfilled life. Will try anything. Been the county’s disabled gymnast of the year and recently learnt to travel independently the 4 mile journey home from ‘work’ on public transport.
She is loved everywhere she goes and I’m not Vicky – I’m Megan’s mum. I wouldn’t have her any other way. She’s my light and inspiration when things around me seem difficult and hard to imagine the outcome. I just look at Megan’s smile and listen to her laugh. It’s a long path but a fulfilling one. Enjoy every moment.