Madoka Hasegawa MD, lives in Japan and has a son named Iori with WAGR syndrome. She is a board certified anesthesiologist of the Japanese Society of anesthesiologists, and works full-time at a general hospital. She has a particular interest in raising awareness of WAGR and stimulating research. Madoka is a board member of Japan WAGR Syndrome Association (JWSA). She works to promote knowledge of WAGR syndrome by producing medical articles and translating IWSA website publications from English to Japanese. She assists Japanese WAGR families to participate in the CoRDS/IWSA Patient, and hopes more families will join the Registry to stimulate research.