International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886
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Better medical care. Powerful research. Family support that makes a real and lasting difference in the lives of kids and adults with WAGR syndrome.
When you support the IWSA, you make ALL of these happen!
On November 13th, please help support WAGR Awareness Day. We are thrilled to dedicate an entire day to WAGR syndrome awareness!
Support the IWSA as we celebrate our loved ones with WAGR syndrome.
The International WAGR Syndrome Association relies soley on the generosity and financial support of individual donors, corporate and family foundation groups, and friends and families of individuals with an interest in the WAGR syndrome community.
There a numerous ways you can financially support the IWSA. You can make a one time donation or have your generosity make a larger impact by becoming a monthly donor. Donations can be made by:
You may donate in honor or memory of a specific individual, to the Amy Marshall Research Fund, or to support WAGR Weekend activities. These options are available when donating by credit card but you may indicate a designation by email, in the memo of your check, or by selecting your preference on the IWSA electronic donation form. If no selection is made, your donation will go to the IWSA general fund.
Show your support and become a recurring donor to support the IWSA year round. Recurring donations help the IWSA to plan and forecast, make financial decisions, and further illustrate your support and interest in the programs and families of the IWSA.
To become a recurring donor, chose the option on the IWSA electronic Donate form.
The IWSA will provide appropriate documentation to individual donors.
At this time, the IWSA maintains a single restricted fund. The Amy Marshall Research Fund was created in memory of Amy Louise Marshall (1995-2015). Amy was diagnosed with WAGR syndrome at 11 years old, after overcoming Wilms tumor at the age of 2 and again at 3-1/2. Amy was passionate about helping families and served as an informal host to families participating in the studies of WAGR Syndrome at the National Institutes of Health. She and her family hosted three WAGR Weekends in Maryland and Amy encouraged other families to participate in research. Amy passed away in 2015 at the age of 19, after post-operative complications for removal of a Wilms tumor.
Amy was a joyful young woman who approached life with love and a positive attitude. She worked hard at her studies, was a student athlete, and graduated high school with honors. In 2010, Amy was invited to the White House by President Barrack Obama to participate in the 20th anniversary celebration of the Americans with Disabilities Act of 1990.
The IWSA honors Amy's memory and life by maintaining the fund and by supporting projects and initiatives related to Wilms tumor research and treatment.
Donating to the IWSA in honor or in memory of a special individual or family is a wonderful way to not only show them your support but to also support their community. Indicate your desire in the "Note" section on the IWSA electronic Donate form or in the memo area of your donation check.
Your gift may also be made to a specific fund. You may indicate this option on the IWSA's electronic Donate form or in the memo area of your check.
The IWSA will glady communicate your generosity to the individual/family you have chosen to honor.
To learn more about the work the IWSA does, review recent Annual Impact Reports:
2024 Impact Report
2023 Impact Report
2022
Impact Report
It is the policy of the International WAGR Syndrome Association to operate in a manner that provides transparency and accountability, and to make relevant, reliable information about income, financial position, and governance of the organization freely available. The IWSA receives high rankings by nonprofit oversight organizations.
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