It is the policy of the International WAGR Syndrome Association to operate in a manner that provides transparency and accountability, and to make relevant, reliable information about income,
financial position, and governance of the organization freely available. The IWSA receives high rankings by nonprofit oversight organizations.
The International WAGR Syndrome Association is a 501(c)(3) non profit organization
incorporated in 2004. The IWSA is the only international organization focused on promoting awareness, stimulating research, and supporting families affected by WAGR syndrome.
Policies of the International WAGR Syndrome Association are established by the Board of Directors and form the "rules" that guide and govern the organization. IWSA policies are intended
to reflect the values of the WAGR syndrome community, to insure that the IWSA establishes and maintains respectful and transparent relationships with its stakeholders, and complies with
appropriate laws and regulations governing nonprofit orgranizations.