The International WAGR Syndrome Association is a US-based, not-for-profit 501(c)(3) charitable organization.  It is comprised of an international network of families, health care professionals and researchers, and others who care for individuals with WAGR syndrome.  Membership is free. Funding for the organization comes from donations and grants, sponsorships, memorial donations, and fundraising activities led by member families and friends.

International WAGR Syndrome Association

PO Box 2875
Montgomery Village, Maryland 20886
United States