WAGR Syndrome Overview: Families and Researchers Working Together to Improve Clinical Outcomes
The IWSA does not fund research studies. However, the IWSA does provide researchers with the tools and support they need to make life-changing research happen:
Caroline (adult with WAGR syndrome) standing on HOPE at St Jude Children's Research Hospital
The IWSA is a recognized leader in the Rare Disease community and continously seeks new ways to build capacity to participate in research. The IWSA is a member of:
Collaborating with the IWSA can expand global reach for dissemination of research results and produce a targeted impact through:
To access the WAGR Syndrome Patient Registry researchers must complete the Researcher Access Request Form and email it to cords@sanfordhealth.org
See how the IWSA works with researchers to make life-changing research happen
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