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2026 WAGR Awareness Day

It's that time of year again! The special day--November 13--that the WAGR syndrome community promotes awareness of our ultra rare syndrome and celebrates the special individuals and families…


Save the Date -- 2027 WAGR Weekend

WAGR Weekend 2027 will be hosted by the IWSA and WAGR parents Andrea Daehli and Simen Andresen, and their family and community. Join fellow WAGR families for a weekend of fun, education, and…


Risks of Kidney Disease in WAGR Syndrome

“Risks of Kidney Disease in WAGR Syndrome” was presented at WAGR Weekend 2026 by Dr Keri Drake, Pediatric Nephrologist, UT Southwestern Medical Center and Children’s Medical…


Low Vision Rehabilitation: An Overview

“Low Vision Rehabilitation: An Overview” was presented at WAGR Weekend 2026 by Fay Tripp, Occupational Therapist, Vision Rehabilitation & Performance, Duke Eye Center, Durham,…


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