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Rare Disease Day 2021

IWSA International Rare Disease Day Activities Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the gen…


Save the Date--2021 Virtual WAGR Weekend

Due to COVID-19 and continued concerns for the health and safety of IWSA families around the world, the IWSA will not host in-person events this summer. The hope and plan is to meet in perso…


WAGR story wins FINDACURE Student Voice Competition

Findacure's Student Voice Competition is an annual, international essay competition that focuses on raising the profile of rare diseases within the medical field, particularly with medical st…


Stimulating Research, Producing Real Results

The mission of the IWSA is to "Promote Awareness, Stimulate Research, and Support Families affected by WAGR syndrome. What does it mean to "stimulate research"? While the IWSA does not fund r…


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Montgomery Village, MD 20886

 

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