The University Medical Center/WKZ Utrecht, Netherlands, recently conducted a virtual grands rounds and invited Jan Jongerius and Chantal Dupree to participate and provide a presentation. The…
IWSA International Rare Disease Day Activities
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the gen…
John and Beth Morris are parents of two daughters--Miranda, age 7 (WAGR syndrome) and Juliet, age 5. Several years ago, the Morrises founded Miranda's Mission, a nonprofit family foundation b…
2020 was a year like no other. COVID-19 created worldwide challenges.
The IWSA response to unprecedented challenges and obstacles was to modify plans and find creative ways to support familie…
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