Main Conference Recordings

IWSA families in person and around the world were connected by Zoom to hear about:

• IWSA organization update
• WAGR Syndrome Patient Registry projects
• Current research at CHOP
• Care Management Model for WAGR patients

Full recordings of these sessions are available in both English and Russian below. 

English Recording

Russian Recording

Main Conference Agenda

• Dutch Agenda
• Italian Agenda
• Spanish Agenda

Full Schedule for In-Person Weekend Activities

Friday, July 8

9:00am-2:00pm – IWSA Board of Directors Meeting

3:00pm-5:30pm – Check In/Registration at Hotel

6:00pm - Group photo

6:00pm-7:30pm – Dinner

7:30pm-11:30pm – Mom’s Night Out

Saturday, July 9 

7:00am-8:30am – Breakfast at Hotel

9:00am-12noon – Main Meeting (available LIVE via Zoom) 

12:15pm-1:30pm – Lunch

1:30pm-5:00pm – Group/Family Activity--Georgia Aquarium, Atlanta

5:30pm-7:00pm – Dinner

7:30pm-11:00pm –  Dad’s Night Out

Sunday, July 10

7:00am-9:30am – Breakfast at Hotel

The host family, the Galloways, is planning a lunchtime Barbecue at their home on Sunday.  More information will be provided to registered families.

WAGR Weekend 2023 and Beyond

The IWSA is working to plan WAGR Weekend 2023 in Europe in Utrecht, Netherlands. Tentative date is mid to late September. If you would like to connect with the planning team, contact Shari Krantz at shari.krantz@wagr.org 

There is interest to organize 2023 WAGR Weekend meet ups in the US. If you would like to join the discussion about US meet ups, please contact Tom Cox at tom.cox@wagr.org

Early planning is also underway to discuss holding WAGR Weekend 2024 in July in San Diego, California.