On February 28, the world celebrates the more than 300 million people living with rare diseases. About 500 of them have WAGR syndrome.

WAGR syndrome is one of them...and an ultra rare one!

Rare Disease Day is a great time to raise awareness and share your family's story!

Everyone can participate in the Global Chain of Lights!

In an effort of global solidarity, you are invited to light or decorate your home at 7 PM your local time on 28 February 2026.

You can use garlands, social media filters, candles, disco lamps, colorful decorations… Let your creativity shine!