Rare Disease Day 2021

IWSA International Rare Disease Day Activities

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. The International WAGR Syndrome Association is pleased to take part in Rare Disease Day by spreading awareness and celebrating all WAGR zebras around the world!

Four Easy Ways to Get Involved

• "Show Your Stripes" Photo Challenge

Let’s proudly wear our stripes to raise awareness and show support for the over 300 million people around the world impacted by rare diseases. Post a public picture with the tags #ShowYourStripes and #IWSA throughout the week and spread the word by tagging your family and friends!

• Share your story

Tell your rare disease story by uploading a photo and/or video to your social media with the hash tags #RareDiseaseDay #WAGRSyndrome #IWSA. You can also post your story to the official Rare Disease Day website here.

• Share your photos

Did you take a photo of you and your friends, family and colleagues for Rare Disease Day? Share them with the hash tags #RareDiseaseDay #WAGRSyndrome #IWSA. You can also post them on the official Rare Disease Day website here.

• Follow the IWSA public Facebook and Instagram

Make sure you are following @WAGRsyndrome on Facebook and Instagram. On Rare Disease Day, the IWSA will be sharing information throughout the day on these public pages. You have the power to make these posts go further by sharing, commenting, and tagging your friends and elected officials.

Let's proudly join hands around the world in honor of individuals with WAGR syndrome and each of the other 300 million people impacted by rare disease.