In August 2020, the IWSA hosted a campaign to increase participation in the WAGR Syndrome Patient Registry. We created a series of videos with parents, physicians, researchers, and children/adults with WAGR syndrome, all advocating for the benefits of the patient registry. At the end of the campaign, we held two drawings for a $250 (USD) giftcard from the pool of individuals who either enrolled or updated their registries.
The campaign was a huge success and resulted in an increase of 36 participants with WAGR syndrome!
Check out the campaign videos on our youtube channel:
International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886