Care Management Model: Providing Hope on Rare Disease Day 2022

RARE DISEASE DAY is a celebration of hope for people with rare disorders. The IWSA is celebrating Rare Disease Day 2022 by sharing the recently published Care Management Model and Screening Program for WAGR Spectrum. Parents and physicians can use these long-awaited guidelines to help improve diagnosis and treatment of the conditions associated with WAGR syndrome.

More information will be shared soon.

Additional information about the guidelines and recently published research is available at wagr.org/registryresults