The Interregional Support Center for Patients with Aniridia and WAGR Syndrome in Moscow has produced a video entitled, "Help Me See the World As You See It." The video features a Russian parent speaking about receiving the diagnosis of WAGR syndrome for her child, and how the information and support she has received from the Center has helped her family to cope. The video features English subtitles.
The IWSA collaborates with Aniridia Russia (which includes WAGR syndrome patients and their families), and works closely with Galina Gening, PhD., President of the Interregional Support Center for Patients with Aniridia and WAGR Syndrome in Moscow. Galina also serves as a member of the Board of Directors of Aniridia Europe.
For more information about Aniridia Russia and the Interregional Support Center in Russia, visit http://www.aniridia.ru/
International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886