2020 Impact Report: Accomplishments in Challenging Times
2020 was a year like no other. COVID-19 created worldwide challenges.
The IWSA response to unprecedented challenges and obstacles was to modify plans and find creative ways to support families while promoting awareness and stimualting research related to WAGR syndrome.
Generous donors, committed volunteers, and a supportive international community made many notable achievements possible. Some significant highlights include:
New IWSA website launched
Patient Registry Campaign increased enrollment and participant record updates
WAGR Weekend 2020 became a virtual event that reached IWSA families in 25 countries
WAGR Awareness Day support exceeded expectations with more than 500 donors
Dozens of conferences and meetings were attended virtually