The International WAGR Syndrome Association is pleased to announce that John Morris has been elected to serve as Chair of the organization's Board of Directors. John previously served as Board Secretary and will continue to also serve on the Research and Medical Advocacy team. John brings a wealth of experience to this important leadership role.
John replaces the current IWSA Chair, Kelly Trout, who remains on the Board and will now serve as Board Secretary, and continue as Director of the IWSA Research and Medical Advocacy team.
"I am so excited to support our new Board Chair John Morris," explains Kelly. "As Director of the MossRehab Orthopedic Physical Therapy Residency Program and Clinical Manager of two MossReHab outpatient facilities (Philadelphia, PA), John brings all the professional skills needed to lead this organization towards a bright and productive future. And as the father of a child with WAGR spectrum, John understands the unique challenges faced by IWSA families around the world and is passionate about fulfilling the mission of the IWSA."
"Once I learned about WAGR spectrum and how it would potentially affect my daughter Miranda, it has been my mission to support her and others with WAGR to the best of my abilities," says John. "As Board Chair, I plan to continue my efforts in providing support to our WAGR families with the hope that I can make a difference in the lives of those affected WAGR spectrum."
John and his wife Beth with daughters Miranda (left) and Juliet
The IWSA Board of Directors and staff currently include
John Morris, Chair
Nikki Hoffman, Treasurer
Kelly Trout, Secretary
Linda van de Sande, Member and European Representative
Tom Cox, Member
Rhonda Sena, Member Emeritus
Shari Krantz, Executive Director
The chart below illustrates the IWSA's current operations flow chart. Executive Committees will begin meeting in early 2023. Teams, overseen by the Executive Director, are comprised of Board members and volunteers. If you are interested in volunteering your time and skills, and/or joining a team, contact Shari Krantz at firstname.lastname@example.org
The IWSA plans to expand the Board of Directors in 2023. If you would like more information about becoming a Board member or nominating an individual for this position, contact Kelly Trout at email@example.com
International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886