The IWSA and Vision for Tomorrow Foundation (VFT) executed a Memorandum of Understanding (MOU) in November 2021. The IWSA and VFT share common goals and objectives and are pleased to formalize their relationship to collaborate and work together for the benefit of individuals with WAGR syndrome and aniridia.
VFT, a nonprofit organization based in Illinois, was founded in 2006 to serve the low vision community, including individuals with aniridia and albinism. The VFT vision, according to Board President Susan Wolfe, is "to empower people with low vision to have the confidence and ability to achieve their dreams. We envision a world where vision problems may be cured--or even prevented." She continues, "That is why funding research is at the heart of our foundation. Research makes it possible to better understand and more effectively treat ocular complications."
VFT Leadership, left to right: Matt Wolfe, Treasurer; Susan Wolfe, President; Suzanne Chinn, Patient Support; Grayson Chinn, VP & Secretary
VFT funds research for better treatments and/or prevention of conditions associated with aniridia and albinism by:
creating a research strategy that prioritizes projects
establishing relationships with the leading researchers in the field
identifying treatments or preventions with the greatest impact on quality of life
actively fundraising to fund research
THE IWSA and VFT have been effectively collaborating for several years and representatives of both organizations recently played important roles in the creation of the new nonprofit organization Aniridia North America (ANA). VFT and the IWSA were both sponsors for and attended the recent 2021 Aniridia North America Symposium: Pax6, Aniridia, and Beyond, held in Charlottesville, Virginia.
left to right, Susan Wolfe (VFT), and Kelly Trout and Shari Krantz (IWSA) attended and represented their organizations and patient communities in November at the ANA Symposium at UVA
The IWSA looks forward to working closely with VFT to advance research related to aniridia and its complications.
International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886