Tara is a sociable, lovable girl with an infectious laugh. She has a passion for music; she loves to sing and be sung to and to watch musical DVDs on her iPad. She loves to pretend to do what adults do, especially mummy and there is no doubt she is developing lots of life skills for when she is older! Tara enjoys stories and to be read to; she remembers all the words of her favourite tales. She is an affectionate little girl who genuinely charms the people who get to know her and helps to show them how to connect with her and to entertain her. They all know who is boss! She loves her brother, who in turn adores her too (most of the time!) and is fiercely proud and protective of her.
So far, during the first six years of her life, she has faced many medical conditions, operations and procedures: kidney cancer, cataracts, ear disease (cholesteatoma), adenoidectomy, recurrent kidney infections, high blood pressure, high eye pressure and glue ear. However, she loves life and bounces back quickly from treatments and operations.
Despite her unknown trajectory when she was first diagnosed, she can now walk, talk, make friends and is making progress in numeracy and pre-reading & pre-writing skills. She is so much more than her severe visual impairment, moderate hearing impairment, moderate learning difficulties and speech and language disorder. She is a happy, determined little girl with a massive personality who makes the most of life, despite her difficulties. She continues to push the boundaries of what people might suspect her potential to be and ‘wow’ us all on a daily basis!
International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886