International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886
201947169
"WAGR Awareness Day" is one day a year dedicated to increasing international understanding of:
WAGR Awareness Day is also the IWSA's largest fundraiser of the year. Donations and community support are crucial to helping the organization to continue pursuing its mission. WAGR Awareness Day is the opportunity for everyone to show their support and generosity.
The first WAGR Awareness Day was held on November 13, 2017. Since then, this annual event has continued to grow.
WAGR syndrome is caused by a genetic deletion that involves Chromosome 11p13 . All individuals with WAGR syndrome share a common segment of deleted genes that includes the WT1 (Wilms tumor) gene, and the PAX6 (Aniridia) gene, as well as the genes that lie between these two.
In recognition of the location of this genetic deletion, WAGR Awareness Day is celebrated each year on November 13th.
Join our WAGR Awareness Day Photo Contest and help the IWSA to raise money to keep supporting our families around the world!
Photo entries are for WAGR families only and restricted to one picture per family. Pictures need to be zebra related. Voting is open to everyone so invite your families and friends to vote for your picture. By doing this, you will raise money for the IWSA and have a chance of winning the photo contest.
Take a zebra related picture of your WAGR child.
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Upload the picture on our contest page to enter the contest. Note: you will need to create an account to log in and enter your photo.
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Share your entry on social media and invite your community to vote for your picture.
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The photo contest runs from October 1 to November 16.
Questions? Email linda.vandesande@wagr.org
Aniridia
Kidney Health
Patient Registry
Scoliosis
Wilms Tumor
WAGR Awareness Day is a unique opportunity to share information about WAGR syndrome and how the IWSA supports individuals and families affected by the rare disorder. This is a great way to show your support--encourage family members, friends, coworkers, and others in your community to donate to the IWSA.
Tell Your IWSA Story
One of the best ways you can participate is by sharing how WAGR syndrome and the IWSA has impacted your journey. Your community will be most impacted by hearing directly from you!
Create a Facebook Fundraiser
Help make it easier for your community to donate to the IWSA by creating your own Facebook fundraiser. It is very easy to set up and your community will feel great knowing they are supporting YOU through their IWSA contributions!
Video - How the IWSA Helps Families
Better medical care. Powerful research. Family support that makes a real and lasting difference in the lives of kids and adults with WAGR syndrome.
When you support the IWSA, you make ALL of these happen!
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