International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886
Join families around the world to raise awareness of WAGR and raise funds for the organization that supports the individuals and families affected by this rare disorder.
WAGR Awareness Day is the IWSA’s largest fundraiser of the year and your help is needed!
This year our group fundraiser “WALK WITH US FOR WAGR” is a great opportunity to share your story with your community. Your participation will help shine a light on WAGR syndrome and support children and families worldwide.
Be Creative. Host your own Walk or Activity
Examples of Events
Team Amy–Shari Krantz, Maryland, USA. Make fliers and put in neighborhood mailboxes inviting people to join me on November 8 to walk our neighborhood to share my story and raise funds for the IWSA. I will have a donation jar at my driveway when we start the walk and also include the link and QR codes for donations on my flier. I will share my story about Amy’s WAGR journey and talk about my work with the IWSA and our special families around the world.
Team Dylan–Linda van de Sande, Belgium. Created an event in November and will invite people to walk together with Dylan (hiking trail of 5 km). The event will include the walk and a cup of soup and a get together at Linda's home. Participants will receive a small gadget (pin, bracelet, …) for their participation. There will also be a possibility for family and friends to attend virtually. They will walk in their own area or country and donate money.
Every step, every donation to the IWSA helps provide hope and support for individuals with WAGR and their families.
Big thank you to the following teams who have signed up to Walk for WAGR 2025!
Please submit your team photos to share with our community (email shari.krantz@wagr.org)
"WAGR Awareness Day" is one day a year dedicated to increasing international understanding of:
WAGR Awareness Day is also the IWSA's largest fundraiser of the year. Donations and community support are crucial to helping the organization to continue pursuing its mission. WAGR Awareness Day is the opportunity for everyone to show their support and generosity.
The first WAGR Awareness Day was held on November 13, 2017. Since then, this annual event has continued to grow.
WAGR syndrome is caused by a genetic deletion that involves Chromosome 11p13 . All individuals with WAGR syndrome share a common segment of deleted genes that includes the WT1 (Wilms tumor) gene, and the PAX6 (Aniridia) gene, as well as the genes that lie between these two.
In recognition of the location of this genetic deletion, WAGR Awareness Day is celebrated each year on November 13th.
Aniridia
Kidney Health
Patient Registry
Scoliosis
Wilms Tumor
WAGR Awareness Day is a unique opportunity to share information about WAGR syndrome and how the IWSA supports individuals and families affected by the rare disorder. This is a great way to show your support--encourage family members, friends, coworkers, and others in your community to donate to the IWSA.
Tell Your IWSA Story
One of the best ways you can participate is by sharing how WAGR syndrome and the IWSA has impacted your journey. Your community will be most impacted by hearing directly from you!
Create a Facebook Fundraiser
Help make it easier for your community to donate to the IWSA by creating your own Facebook fundraiser. It is very easy to set up and your community will feel great knowing they are supporting YOU through their IWSA contributions!
Better medical care. Powerful research. Family support that makes a real and lasting difference in the lives of kids and adults with WAGR syndrome.
When you support the IWSA, you make ALL of these happen!
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