Cody is a 14yo girl from Australia living with wagr syndrome. Cody loves to sing and dance, swim, play on her ipad, imaginative play with her toys and character dolls and to boss everyone around. Cody has an incredible memory. She has beautiful red hair and a flawless complexion. She loves people and will tell strangers in the supermarket anything about her day no matter how embarrassing. Waiting for anything is not high on her agenda, neither is being in crowded places. Doctors appointments are always welcomed with much excitement, she is brave and tough. Cody amazes everybody. Our precious girl is the light of our lives. She is always happy and smiling…well, most of the time. Life is challenging, caring for Cody can be exhausting and frustrating. But then she’ll come to me with a chirpy “see ya mum, I going <to the> beach <with my> friends”, throw Upsy Daisy, Tom Cat and Maisy Mouse into a cardboard box and run off to play with them in front of my big wardrobe mirrors. And every moment is worth it.
This is Selma. She is 1 year and 8 months old and lives in Norway with her mom, Andrea, and her dad, Simen. Selma is a very active and happy girl full of joy for life who loves to be with oth…
This is George. He is 6 years old and lives in the south East of England with his brothers Zachary (5) and Jacob (8).
George is such a light in our lives. He loves nothing more than listening…
Mia lives in the USA and is 2 and a half years old. She has two rare syndromes called WAGR-O and Potocki-Shaffer. Mia was diagnosed blind at 6 months old and at 10 months they gave us genetic…