This is Selma. She is 1 year and 8 months old and lives in Norway with her mom, Andrea, and her dad, Simen. Selma is a very active and happy girl full of joy for life who loves to be with oth…
This is George. He is 6 years old and lives in the south East of England with his brothers Zachary (5) and Jacob (8). George is such a light in our lives. He loves nothing more than listening…
Mia lives in the USA and is 2 and a half years old. She has two rare syndromes called WAGR-O and Potocki-Shaffer. Mia was diagnosed blind at 6 months old and at 10 months they gave us genetic…
Now 23 years old, Jenna is a survivor of childhood cancer, earned a black belt in karate, played percussion in the “pit” of her high school marching band, and is going to college t…
Maelynn is 7 years old. She is a very social and sweet girl, loved by everyone who knows her. She smiles all the time and often greets everybody while walking down the street. Maelynn is alway…
Iori is a sociable and charming boy with beautiful smiles. He loves music; he enjoys watching music video on his iPad and expressing the feeling with his body. In most of his life, he has expe…
Caroline was born in 1981. She has all of the main features of WAGR syndrome: she had Wilms tumor when she was 18 months old, she has aniridia, she has abnormal ovaries, and she has significan…
Emma was born in 2013 and is a very spirited seven year old little girl. She has been through a lot of challenges in her short life (cancer treatments, ER visits, tons of visits to specialist…
Cody is a 14yo girl from Australia living with wagr syndrome. Cody loves to sing and dance, swim, play on her ipad, imaginative play with her toys and character dolls and to boss everyone arou…
Tara is a sociable, lovable girl with an infectious laugh. She has a passion for music; she loves to sing and be sung to and to watch musical DVDs on her iPad. She loves to pretend to do what…
Our journey started in September of 1988. Ashley was born and after a difficult few months was a mostly happy, always active, life of the party day and night baby! We were given her diagnosis…
Over time we have come to grieve less for the child we thought we would have and to celebrate more who Nathan is. He was born in 1981, long before WAGR.org existed. There was only our family,…
Hi, my name is Jenny, I am in my early 30s and I live and work in the south west of England. I work part-time in a school and college for young people with visual impairments and other complex…
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