For the first time sincs 2019, the IWSA held WAGR Weekend in person. The Galloway Family hosted the event and was supported by an amazing community of donors, sponsors, and wonderful volunteers!
IWSA families in person and around the world were connected by Zoom to hear about:
IWSA organization update
WAGR Syndrome Patient Registry projects
Current Research at CHOP
Care Management Model for WAGR patients
Current research at Children's Hospital of Philadelphia (CHOP) was discussed by Dr Jennifer Kalish. The Kalish Lab Team was at the event to interact with IWSA families and discuss participating in a current study. Nearly every family in attendance chose to join the study!
Additional information on the conference, incuding access to conference recordings, can be found here
International WAGR Syndrome Association
PO Box 2875
Montgomery Village, MD 20886