It's that time of year again! The special day--November 13--that the WAGR syndrome community promotes awareness of our ultra rare syndrome and celebrates the special individuals and families it affects.
Join families around the world to raise awareness of WAGR and raise funds for the organization that supports the individuals and families affected by this rare disorder.
WAGR Awareness Day is the IWSA’s largest fundraiser of the year and your help is needed!
This year our group fundraiser “WALK WITH US FOR WAGR” is a great opportunity to share your story with your community. Your participation will help shine a light on WAGR syndrome and support children and families worldwide.
More information is available here
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